This book challenges assumptions about equity and access in healthcare and well-being. Many Americans believe that current observations of health disparities reflecting increased vulnerability among communities of color are attributable primarily to poor decisions and failure to consult or comply with healthcare professionals. They believe that the problems which members of these communities are experiencing most acutely during the pandemic are a result of specific behaviors that people of color choose (e.g., eating unhealthy food) or deliberately refrain from doing (e.g., regularly visiting a doctor). In reality, there are an array of other reasons for the observed vulnerabilities of people of color who must navigate the healthcare system that results from deeply held stereotypes about them and a range of formal and informal institutional practices that do not have their best interests at heart.
This book chronicles the author's experiences in seeking and obtaining care and draws from principles of qualitative research to infer and provide insights about the way that the healthcare system works from the perspective of a critically ill patient. What is most clear from this effort is that there are unintended obstacles (beyond the usual suspects) to obtaining healthcare that had very little to do with having insurance or being able to pay for care. Instead, whether treatment and care were obtained was determined in large part by a constellation of implicit cognitive associations, historic inequities, and systemic and institutional biases. The latter factors including systemic institutional bias as well as historic inequities together are embedded within the structure of the healthcare insurance industry.
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