Alfred L Scherzer, Erika Cloodt

Caring for Children with Neurodevelopmental Disabilities (eBook, ePUB)

Stories from a Pediatric Practice

• Format: ePub

Produktbeschreibung

Caring for Children with Neurodevelopmental Disabilities is a powerful collection of narrative clinical stories drawn from the long career of developmental pediatrician Dr. Alfred L Scherzer. Focused on children with disabilities and their families, each chapter includes a pediatrician's perspective, a real-life story, and reflective commentary. These deeply human stories illuminate the complexities of disability care, offering nuanced insights into clinical challenges, ethical dilemmas, family dynamics, and the lifelong impact of early intervention.

Rather than clinical guidelines, these are personal recollections meant to spark reflection, discussion, and empathy. They emphasize the importance of patient- and family-centered care, the role of storytelling in medical education, and the value of lived experience alongside professional expertise. From navigating diagnoses to balancing autonomy and protection, the narratives underscore the emotional and societal dimensions of childhood-onset disabilities.

The book supports professional learning for clinicians working with children with neurodevelopmental disabilities; strengthens team communication, and offers validation and insight for families navigating similar experiences.

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Produktdetails

• Verlag: Mac Keith Press
• Seitenzahl: 230
• Erscheinungstermin: 22. September 2025
• Englisch
• ISBN-13: 9781911612735
• Artikelnr.: 75482632

Autorenporträt

Clinical Professor Emeritus of Pediatrics, Weill Cornell Medical College, New York, USA; Past President, American Academy for Cerebral Palsy and Developmental Medicine (AACPDM)

Inhaltsangabe

Foreword
Bernard Dan
 
Acknowledgments
 
1. Introduction
 
2. Perspectives on the Stories
 
3. Albert - Healthcare Providers Assisting Parental Acceptance of Down
Syndrome
 
4. Bao Hong - Growth and Development in Cerebral Palsy Through Continuous
Parental Involvement
 
5. Bobby - When to Recognize Limits and Set Realistic Goals with Spina
Bifida
 
6. Brad - When There Is No Clear Solution to Unresolved Conflict Over ADHD
Medication
 
7. Christine and Charlie - Managing Acceptance and Clinical Bias in
Family-Centered Care
 
8. Christopher - When Ability in a Child with Down Syndrome Overcame
Bullying
 
9. Eddie - The Unique Abilities and Positive Outcome for an Adult with
Intellectual Disability
 
10. Howard - A Family's Search for Answers for Their Child with Autism
 
11. James - Addressing Excessive Parental Care of a Child with Cerebral
Palsy
 
12. Jay - When Delayed Diagnosis Affected the Development of a Child with
ADHD
 
13. Jimmy and Gayle - A Parent's Journey in Understanding and Accepting Her
Children's ADHD
 
14. Joseph - How Family Counseling Can Help Resolve Conflict and Enable
Effective Treatment of Tourette Syndrome
 
15. Justin - Assisting Families to Move Towards Realistic Expectations of
Cerebral Palsy
 
16. Krysten - Long-Term Professional Relationships and Severe Behavioral
Challenges in Hydrocephalus
 
17. Margaret - Helping Parents Recognize the Potential in Down Syndrome
 
18. Moira - Fostering Independence in Spina Bifida Through Family and
Medical Support
 
19. Nilda - Alternatives for Care and Long-term Management for the Child
with Multiple Non-Progressive Disabilities
 
20. Peter - Abuse of Medication and Family Support for Rehabilitative Care
in ADHD
 
21. Raymond - When a Parent's Priorities Conflict with the Medical Needs of
a Child with Cerebral Palsy
 
22. Robert - How Community Participation Can Foster Motivation in ADHD
 
23. Ronnie - Helping Parents Navigate Alternative Therapies for Cerebral
Palsy Treatment
 
24. Sarah - Late Diagnosis of Autism Spectrum Disorder through
Inter-Physician Referral
 
25. Scott - Managing Care and Attempting to Foster Independence in a Child
with Lesch-Nyhan Syndrome
 
26. Tanya - The Resilient Family of a Child with Cerebral Palsy Maintaining
Professional Boundaries
 
27. Tommy - When Complex Family Dynamics and History Affect ADHD
 
28. Vasant - A Fully Functioning Independent Adult Despite a History of
Social Deprivation and Multiple Disabilities
Index