This book is for anyone interested in research involving humans, such as researchers, potential participants, ethics committees and institutional review boards, university educators and students, and policy makers. It analyses the limitations of respect for autonomy that lead to under-research of vulnerable groups, and explores new ethical approaches.
This book is for anyone interested in research involving humans, such as researchers, potential participants, ethics committees and institutional review boards, university educators and students, and policy makers. It analyses the limitations of respect for autonomy that lead to under-research of vulnerable groups, and explores new ethical approaches.
Introduction. The limits of respect for autonomy David G. Kirchhoffer; Part I. Exploring Problems of Respect for Autonomy in Bioethics, Law and Society: 1. Autonomy and the law: widely used, poorly defined Bernadette J. Richards; 2. Lack of autonomy: debates concerning research involving children Thomas H. Murray; 3. Diminished autonomy: consent and chronic addiction Steve Matthews and Jeanette Kennett; 4. Compromised autonomy: social inequality and issues of status and control S. Stewart Braun; Part II. The Search for Alternative or Complementary Concepts Surrounding Autonomy: 5. Self-ownership in research ethics Garrett Cullity; 6. Beneficence in research ethics David G. Kirchhoffer, Christi D. Favor and Christopher D. Cordner; 7. Dignity, being and becoming in research ethics David G. Kirchhoffer; 8. Virtues in research ethics: developing an empirically-informed account of virtues in biomedical research practice Justin Oakley; Part III. Beyond Autonomy: Turning to the Community to Protect the Individual: 9. Duties of shared membership in research ethics José Miola; 10. Engaging communities in human research in the Global South Anita Ho; 11. Reducing shared vulnerabilities to data misuse Wendy Rogers.
Introduction. The limits of respect for autonomy David G. Kirchhoffer; Part I. Exploring Problems of Respect for Autonomy in Bioethics, Law and Society: 1. Autonomy and the law: widely used, poorly defined Bernadette J. Richards; 2. Lack of autonomy: debates concerning research involving children Thomas H. Murray; 3. Diminished autonomy: consent and chronic addiction Steve Matthews and Jeanette Kennett; 4. Compromised autonomy: social inequality and issues of status and control S. Stewart Braun; Part II. The Search for Alternative or Complementary Concepts Surrounding Autonomy: 5. Self-ownership in research ethics Garrett Cullity; 6. Beneficence in research ethics David G. Kirchhoffer, Christi D. Favor and Christopher D. Cordner; 7. Dignity, being and becoming in research ethics David G. Kirchhoffer; 8. Virtues in research ethics: developing an empirically-informed account of virtues in biomedical research practice Justin Oakley; Part III. Beyond Autonomy: Turning to the Community to Protect the Individual: 9. Duties of shared membership in research ethics José Miola; 10. Engaging communities in human research in the Global South Anita Ho; 11. Reducing shared vulnerabilities to data misuse Wendy Rogers.
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