The concern for the role of quality assessments in social policy, especially health policy and ethical and social issues raised by prenatal testing for disability are here discussed.
The concern for the role of quality assessments in social policy, especially health policy and ethical and social issues raised by prenatal testing for disability are here discussed.
Contributors Acknowledgements Introduction David Wasserman, Jerome Bickenbach and Robert Wachbroit 1. Assessing quality of life: clinical versus health policy uses Robert Wachbroit 2. Predicting genetic disability while commodifying health Anita Silvers 3. Preventing genetically transmitted disabilities while respecting persons with disabilities Dan W. Brock 4. Disability, ideology and quality of life: a bias in biomedical ethics Ron Amundson 5. Values for health states in QALYs and DALYs: desirability versus well-being and worth Erik Nord 6. Preventing the existence of people with disabilities Jeff McMahan 7. Where is the sin is synecdoche? Prenatal testing and parent-child relationship Adrienne Asch and David Wasserman 8. The social context of individual choice Tom Shakespeare 9. Disability and health systems assessment Jerome Bickenbach Index.
Contributors Acknowledgements Introduction David Wasserman, Jerome Bickenbach and Robert Wachbroit 1. Assessing quality of life: clinical versus health policy uses Robert Wachbroit 2. Predicting genetic disability while commodifying health Anita Silvers 3. Preventing genetically transmitted disabilities while respecting persons with disabilities Dan W. Brock 4. Disability, ideology and quality of life: a bias in biomedical ethics Ron Amundson 5. Values for health states in QALYs and DALYs: desirability versus well-being and worth Erik Nord 6. Preventing the existence of people with disabilities Jeff McMahan 7. Where is the sin is synecdoche? Prenatal testing and parent-child relationship Adrienne Asch and David Wasserman 8. The social context of individual choice Tom Shakespeare 9. Disability and health systems assessment Jerome Bickenbach Index.
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