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Genetic counseling is one of the fastest growing fields across clinical care, medical research, and health-related industries. The Oxford Handbook of Genetic Counseling is a comprehensive and authoritative handbook for the field of genetic counseling. The volume presents thirty-six chapters covering perennial and emerging issues in genetic counseling, reflecting the field's history, inter-professional impact in healthcare, and global expansion. Bringing together an international and interdisciplinary team of authors with expertise and experience in genetic counseling practice and research,…mehr
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Genetic counseling is one of the fastest growing fields across clinical care, medical research, and health-related industries. The Oxford Handbook of Genetic Counseling is a comprehensive and authoritative handbook for the field of genetic counseling. The volume presents thirty-six chapters covering perennial and emerging issues in genetic counseling, reflecting the field's history, inter-professional impact in healthcare, and global expansion. Bringing together an international and interdisciplinary team of authors with expertise and experience in genetic counseling practice and research, genetic and genomic research, ethics and political theory, and healthcare practice, the volume provides scholarly chapters covering clinical practice, research, industry, genetic/genomic testing, ethical and social issues, as well as the field's historical development, globalization, and future directions. Authors include genetic counselors, clinical geneticists, medical researchers, bioethicists, legal and policy experts, and other healthcare professionals. The Oxford Handbook of Genetic Counseling is an invaluable resource for genetic counselors, genetic counseling students and faculty, and bioethicists. Given its scope and diversity of topics, it is also an important resource for clinical faculty, health researchers, and healthcare providers who are increasingly encountering genetics and genomics in their respective fields.
Produktdetails
- Produktdetails
- Verlag: Oxford University Press
- Seitenzahl: 792
- Erscheinungstermin: 23. September 2025
- Englisch
- Gewicht: 5g
- ISBN-13: 9780190069964
- ISBN-10: 0190069961
- Artikelnr.: 68058840
- Herstellerkennzeichnung
- Libri GmbH
- Europaallee 1
- 36244 Bad Hersfeld
- gpsr@libri.de
- Verlag: Oxford University Press
- Seitenzahl: 792
- Erscheinungstermin: 23. September 2025
- Englisch
- Gewicht: 5g
- ISBN-13: 9780190069964
- ISBN-10: 0190069961
- Artikelnr.: 68058840
- Herstellerkennzeichnung
- Libri GmbH
- Europaallee 1
- 36244 Bad Hersfeld
- gpsr@libri.de
Robin E. Grubs, PhD, LCGC is an Associate Professor of Human Genetics at the University of Pittsburgh. An active participant in national genetics organizations, Grubs served as President of the American Board of Genetic Counseling and as an Executive Committee member of the Genetic Counselor Educators Association. Currently, she is an Editorial Board member for the Journal of Genetic Counseling. She has published on genetic counseling education, psychosocial effects of genetic testing, ethical issues in genetic counseling and the use of qualitative methods in genetic counseling research. She is the recipient of the 2019 University of Pittsburgh Chancellor's Distinguished Teaching Award. Emily G. Farrow, PhD, CGC is an Associate Professor of Pediatrics at the University of Missouri-Kansas City School of Medicine. As a genetic counselor and assistant clinical laboratory director, she has been active in the development and implementation of novel next generation sequencing tests. She has numerous publications on next generation sequencing, particularly in rare pediatric disease. Farrow is also the principle investigator for a genomic medicine short course, developed for the education of clinicians on genomic medicine. Michael J. Deem, PhD is an Associate Professor in the Department of Human Genetics and Core Faculty in the Center for Bioethics & Health Law at the University of Pittsburgh. He has published widely in philosophy and bioethics, and has taught ethics courses in genetic counseling, medicine, nursing, philosophy, and rehabilitation science programs for over a decade. He completed a Ph.D. in Philosophy at the University of Notre Dame and the Pediatric Ethics and Genomics Fellowship Children's Mercy Hospital.
* Contributors
* Preface
* Acknowledgments
* Part I: The Emergence and Establishment of the Genetic Counseling
Profession
* 1 - Negotiating Heredity, Choice, and Coercion: A Gendered History of
Genetic Counseling and Reproductive Advice, 1910-1960
* Devon Stillwell
* 2 - The Development of Education for Genetic Counselors
* Bonnie Jeanne Baty and Claire Davis
* 3 - The Professionalization of Genetic Counseling
* Vickie L. Venne and Edward M. Kloza
* Part II: Engaging in the Practice of Genetic Counseling
* 4 - A Theory of Responsive Genetic Counseling Practice
* Robin E. Grubs and Maria Piantanida
* 5 - The Reciprocal-Engagement Model of Genetic Counseling Practice
* Patricia McCarthy Veach and Bonnie S. LeRoy
* 6 - New Perspective in Psychosocial Genetic Counseling
* Jon Weil
* Part III: Contexts of Genetic Counseling Practice
* 7 - Prenatal Genetic Counseling
* Sandra A. Darilek and Jennifer Hoskovec
* 8 - Pediatric Genetic Counseling
* Carol S. Walton
* 9 - Cancer Genetic Counseling
* Stephanie A. Cohen
* 10 - Specialization and Sub-Specialization in Genetic Counseling:
Trends and Drivers
* Catherine A. Wicklund and Angela M. Trepanier
* 11 - The Genetic Counselor's Role in Direct-to-Consumer Genetic
Testing
* Anne E. Greb
* 12 - Genetic Counselors as Researchers
* Julia Wynn and Tara Schmidlen
* 13 - Genetic Counselors in Marketing and Industry
* Elissa Levin and Edgar MacBean
* 14 - Genetic Counseling Approaches for Adolescents and Young Adults
* Melanie F. Myers and Wendy R. Uhlmann
* Part IV: Navigating Contemporary Issues in Genetic Testing and
Genetic Counseling Practice
* 15 - Considerations Before Testing: Patient Education, Decision
Making and Informed Consent
* Kelly E. Ormond
* 16 - Testing Strategies: Navigating the Path of Genetic Testing
* Lee A. Zellmer and Emily G. Farrow
* 17 - After the Test: Interpreting a Clinical Report
* Isabelle Thiffault and Carol J. Saunders
* 18 - Genetic Counselor Liability and Licensure in the Genomics Era
* Susan M. Wolf, Gary E. Marchant, Hannah M. Oliason, Bonnie S. LeRoy
* 19 - Family History in Contemporary Genetics
* Debra L. Collins and Devin M. Cox
* 20 - Common and Complex Traits: Considerations for Genetic Counseling
* Eleanor Feingold
* 21 - Risk Assessment of Secondary Findings
* Eric T. Rush
* 22 - Genetics and Genetic Counseling in the Internet Age
* Lauren Gallagher and Leslie Ordal
* Part V: Normative Concepts and Ethical Issues in Genetic Counseling
* 23 - Nondirectiveness in Genetic Counseling: Conceptual and Normative
Dimensions
* Michael J. Deem
* 24 - Communicating Family Information in Genetic Counseling: An
Ethical Perspective
* Samantha J. Leonard and Ainsley J. Newson
* 25 - Genetic Counselors' Personal Reactions and the Ethical
Implications for Genetic Counseling Practice
* Patricia McCarthy Veach and Krista Redlinger-Grosse
* 26 - Ethical and Social Issues Connected to Genetic Testing of
Fetuses, Infants, and Children
* Dena S. Davis
* 27 - Genetic Counseling and the Problem of Exploitation
* Naomi Scheinerman
* 28 - Precision Medicine's Ethical Challenges: Roles for Genetic
Counselors
* Lisa S. Parker
* Part VI: Culture, Disability, and the Social Effects of Genetic
Counseling
* 29 - Cultural Responsiveness and Linguistic Competence in Genetic
Counseling:
* Taking Responsibility
* Nancy Steinberg Warren
* 30 - Genetic Counseling Outcomes, Patient Empowerment, and the
Genetic Counseling Outcome Scale
* Marion McAllister
* 31 - Reforming Informed Consent: On Disability and Genetic Counseling
* Elizabeth Dietz and Joel Michael Reynolds
* 32 - Genetics and Disadvantage: Inequity, Stigma, and Expectation
* Angus Clarke
* Part VII: The Future of Genetic Counseling
* 33 - Anticipating the Growth of Genetic Counseling
* Megan E. Trinkle-Tucker and Beverly M. Yashar
* 34 - Globalization of Genetic Counseling
* Mercy Ygoña Laurino and Austin E. Bland
* 35 - Growing Up with Genomes: Ethical and Practical Considerations of
Prenatal and Postnatal Genomic Sequencing
* Marsha Michie and Aaron J. Goldenberg
* 36 - Considering the Future of Genetic Counseling
* Deborah Cragun, Robert Resta, and Daniel Lee Riconda
* Preface
* Acknowledgments
* Part I: The Emergence and Establishment of the Genetic Counseling
Profession
* 1 - Negotiating Heredity, Choice, and Coercion: A Gendered History of
Genetic Counseling and Reproductive Advice, 1910-1960
* Devon Stillwell
* 2 - The Development of Education for Genetic Counselors
* Bonnie Jeanne Baty and Claire Davis
* 3 - The Professionalization of Genetic Counseling
* Vickie L. Venne and Edward M. Kloza
* Part II: Engaging in the Practice of Genetic Counseling
* 4 - A Theory of Responsive Genetic Counseling Practice
* Robin E. Grubs and Maria Piantanida
* 5 - The Reciprocal-Engagement Model of Genetic Counseling Practice
* Patricia McCarthy Veach and Bonnie S. LeRoy
* 6 - New Perspective in Psychosocial Genetic Counseling
* Jon Weil
* Part III: Contexts of Genetic Counseling Practice
* 7 - Prenatal Genetic Counseling
* Sandra A. Darilek and Jennifer Hoskovec
* 8 - Pediatric Genetic Counseling
* Carol S. Walton
* 9 - Cancer Genetic Counseling
* Stephanie A. Cohen
* 10 - Specialization and Sub-Specialization in Genetic Counseling:
Trends and Drivers
* Catherine A. Wicklund and Angela M. Trepanier
* 11 - The Genetic Counselor's Role in Direct-to-Consumer Genetic
Testing
* Anne E. Greb
* 12 - Genetic Counselors as Researchers
* Julia Wynn and Tara Schmidlen
* 13 - Genetic Counselors in Marketing and Industry
* Elissa Levin and Edgar MacBean
* 14 - Genetic Counseling Approaches for Adolescents and Young Adults
* Melanie F. Myers and Wendy R. Uhlmann
* Part IV: Navigating Contemporary Issues in Genetic Testing and
Genetic Counseling Practice
* 15 - Considerations Before Testing: Patient Education, Decision
Making and Informed Consent
* Kelly E. Ormond
* 16 - Testing Strategies: Navigating the Path of Genetic Testing
* Lee A. Zellmer and Emily G. Farrow
* 17 - After the Test: Interpreting a Clinical Report
* Isabelle Thiffault and Carol J. Saunders
* 18 - Genetic Counselor Liability and Licensure in the Genomics Era
* Susan M. Wolf, Gary E. Marchant, Hannah M. Oliason, Bonnie S. LeRoy
* 19 - Family History in Contemporary Genetics
* Debra L. Collins and Devin M. Cox
* 20 - Common and Complex Traits: Considerations for Genetic Counseling
* Eleanor Feingold
* 21 - Risk Assessment of Secondary Findings
* Eric T. Rush
* 22 - Genetics and Genetic Counseling in the Internet Age
* Lauren Gallagher and Leslie Ordal
* Part V: Normative Concepts and Ethical Issues in Genetic Counseling
* 23 - Nondirectiveness in Genetic Counseling: Conceptual and Normative
Dimensions
* Michael J. Deem
* 24 - Communicating Family Information in Genetic Counseling: An
Ethical Perspective
* Samantha J. Leonard and Ainsley J. Newson
* 25 - Genetic Counselors' Personal Reactions and the Ethical
Implications for Genetic Counseling Practice
* Patricia McCarthy Veach and Krista Redlinger-Grosse
* 26 - Ethical and Social Issues Connected to Genetic Testing of
Fetuses, Infants, and Children
* Dena S. Davis
* 27 - Genetic Counseling and the Problem of Exploitation
* Naomi Scheinerman
* 28 - Precision Medicine's Ethical Challenges: Roles for Genetic
Counselors
* Lisa S. Parker
* Part VI: Culture, Disability, and the Social Effects of Genetic
Counseling
* 29 - Cultural Responsiveness and Linguistic Competence in Genetic
Counseling:
* Taking Responsibility
* Nancy Steinberg Warren
* 30 - Genetic Counseling Outcomes, Patient Empowerment, and the
Genetic Counseling Outcome Scale
* Marion McAllister
* 31 - Reforming Informed Consent: On Disability and Genetic Counseling
* Elizabeth Dietz and Joel Michael Reynolds
* 32 - Genetics and Disadvantage: Inequity, Stigma, and Expectation
* Angus Clarke
* Part VII: The Future of Genetic Counseling
* 33 - Anticipating the Growth of Genetic Counseling
* Megan E. Trinkle-Tucker and Beverly M. Yashar
* 34 - Globalization of Genetic Counseling
* Mercy Ygoña Laurino and Austin E. Bland
* 35 - Growing Up with Genomes: Ethical and Practical Considerations of
Prenatal and Postnatal Genomic Sequencing
* Marsha Michie and Aaron J. Goldenberg
* 36 - Considering the Future of Genetic Counseling
* Deborah Cragun, Robert Resta, and Daniel Lee Riconda
* Contributors
* Preface
* Acknowledgments
* Part I: The Emergence and Establishment of the Genetic Counseling
Profession
* 1 - Negotiating Heredity, Choice, and Coercion: A Gendered History of
Genetic Counseling and Reproductive Advice, 1910-1960
* Devon Stillwell
* 2 - The Development of Education for Genetic Counselors
* Bonnie Jeanne Baty and Claire Davis
* 3 - The Professionalization of Genetic Counseling
* Vickie L. Venne and Edward M. Kloza
* Part II: Engaging in the Practice of Genetic Counseling
* 4 - A Theory of Responsive Genetic Counseling Practice
* Robin E. Grubs and Maria Piantanida
* 5 - The Reciprocal-Engagement Model of Genetic Counseling Practice
* Patricia McCarthy Veach and Bonnie S. LeRoy
* 6 - New Perspective in Psychosocial Genetic Counseling
* Jon Weil
* Part III: Contexts of Genetic Counseling Practice
* 7 - Prenatal Genetic Counseling
* Sandra A. Darilek and Jennifer Hoskovec
* 8 - Pediatric Genetic Counseling
* Carol S. Walton
* 9 - Cancer Genetic Counseling
* Stephanie A. Cohen
* 10 - Specialization and Sub-Specialization in Genetic Counseling:
Trends and Drivers
* Catherine A. Wicklund and Angela M. Trepanier
* 11 - The Genetic Counselor's Role in Direct-to-Consumer Genetic
Testing
* Anne E. Greb
* 12 - Genetic Counselors as Researchers
* Julia Wynn and Tara Schmidlen
* 13 - Genetic Counselors in Marketing and Industry
* Elissa Levin and Edgar MacBean
* 14 - Genetic Counseling Approaches for Adolescents and Young Adults
* Melanie F. Myers and Wendy R. Uhlmann
* Part IV: Navigating Contemporary Issues in Genetic Testing and
Genetic Counseling Practice
* 15 - Considerations Before Testing: Patient Education, Decision
Making and Informed Consent
* Kelly E. Ormond
* 16 - Testing Strategies: Navigating the Path of Genetic Testing
* Lee A. Zellmer and Emily G. Farrow
* 17 - After the Test: Interpreting a Clinical Report
* Isabelle Thiffault and Carol J. Saunders
* 18 - Genetic Counselor Liability and Licensure in the Genomics Era
* Susan M. Wolf, Gary E. Marchant, Hannah M. Oliason, Bonnie S. LeRoy
* 19 - Family History in Contemporary Genetics
* Debra L. Collins and Devin M. Cox
* 20 - Common and Complex Traits: Considerations for Genetic Counseling
* Eleanor Feingold
* 21 - Risk Assessment of Secondary Findings
* Eric T. Rush
* 22 - Genetics and Genetic Counseling in the Internet Age
* Lauren Gallagher and Leslie Ordal
* Part V: Normative Concepts and Ethical Issues in Genetic Counseling
* 23 - Nondirectiveness in Genetic Counseling: Conceptual and Normative
Dimensions
* Michael J. Deem
* 24 - Communicating Family Information in Genetic Counseling: An
Ethical Perspective
* Samantha J. Leonard and Ainsley J. Newson
* 25 - Genetic Counselors' Personal Reactions and the Ethical
Implications for Genetic Counseling Practice
* Patricia McCarthy Veach and Krista Redlinger-Grosse
* 26 - Ethical and Social Issues Connected to Genetic Testing of
Fetuses, Infants, and Children
* Dena S. Davis
* 27 - Genetic Counseling and the Problem of Exploitation
* Naomi Scheinerman
* 28 - Precision Medicine's Ethical Challenges: Roles for Genetic
Counselors
* Lisa S. Parker
* Part VI: Culture, Disability, and the Social Effects of Genetic
Counseling
* 29 - Cultural Responsiveness and Linguistic Competence in Genetic
Counseling:
* Taking Responsibility
* Nancy Steinberg Warren
* 30 - Genetic Counseling Outcomes, Patient Empowerment, and the
Genetic Counseling Outcome Scale
* Marion McAllister
* 31 - Reforming Informed Consent: On Disability and Genetic Counseling
* Elizabeth Dietz and Joel Michael Reynolds
* 32 - Genetics and Disadvantage: Inequity, Stigma, and Expectation
* Angus Clarke
* Part VII: The Future of Genetic Counseling
* 33 - Anticipating the Growth of Genetic Counseling
* Megan E. Trinkle-Tucker and Beverly M. Yashar
* 34 - Globalization of Genetic Counseling
* Mercy Ygoña Laurino and Austin E. Bland
* 35 - Growing Up with Genomes: Ethical and Practical Considerations of
Prenatal and Postnatal Genomic Sequencing
* Marsha Michie and Aaron J. Goldenberg
* 36 - Considering the Future of Genetic Counseling
* Deborah Cragun, Robert Resta, and Daniel Lee Riconda
* Preface
* Acknowledgments
* Part I: The Emergence and Establishment of the Genetic Counseling
Profession
* 1 - Negotiating Heredity, Choice, and Coercion: A Gendered History of
Genetic Counseling and Reproductive Advice, 1910-1960
* Devon Stillwell
* 2 - The Development of Education for Genetic Counselors
* Bonnie Jeanne Baty and Claire Davis
* 3 - The Professionalization of Genetic Counseling
* Vickie L. Venne and Edward M. Kloza
* Part II: Engaging in the Practice of Genetic Counseling
* 4 - A Theory of Responsive Genetic Counseling Practice
* Robin E. Grubs and Maria Piantanida
* 5 - The Reciprocal-Engagement Model of Genetic Counseling Practice
* Patricia McCarthy Veach and Bonnie S. LeRoy
* 6 - New Perspective in Psychosocial Genetic Counseling
* Jon Weil
* Part III: Contexts of Genetic Counseling Practice
* 7 - Prenatal Genetic Counseling
* Sandra A. Darilek and Jennifer Hoskovec
* 8 - Pediatric Genetic Counseling
* Carol S. Walton
* 9 - Cancer Genetic Counseling
* Stephanie A. Cohen
* 10 - Specialization and Sub-Specialization in Genetic Counseling:
Trends and Drivers
* Catherine A. Wicklund and Angela M. Trepanier
* 11 - The Genetic Counselor's Role in Direct-to-Consumer Genetic
Testing
* Anne E. Greb
* 12 - Genetic Counselors as Researchers
* Julia Wynn and Tara Schmidlen
* 13 - Genetic Counselors in Marketing and Industry
* Elissa Levin and Edgar MacBean
* 14 - Genetic Counseling Approaches for Adolescents and Young Adults
* Melanie F. Myers and Wendy R. Uhlmann
* Part IV: Navigating Contemporary Issues in Genetic Testing and
Genetic Counseling Practice
* 15 - Considerations Before Testing: Patient Education, Decision
Making and Informed Consent
* Kelly E. Ormond
* 16 - Testing Strategies: Navigating the Path of Genetic Testing
* Lee A. Zellmer and Emily G. Farrow
* 17 - After the Test: Interpreting a Clinical Report
* Isabelle Thiffault and Carol J. Saunders
* 18 - Genetic Counselor Liability and Licensure in the Genomics Era
* Susan M. Wolf, Gary E. Marchant, Hannah M. Oliason, Bonnie S. LeRoy
* 19 - Family History in Contemporary Genetics
* Debra L. Collins and Devin M. Cox
* 20 - Common and Complex Traits: Considerations for Genetic Counseling
* Eleanor Feingold
* 21 - Risk Assessment of Secondary Findings
* Eric T. Rush
* 22 - Genetics and Genetic Counseling in the Internet Age
* Lauren Gallagher and Leslie Ordal
* Part V: Normative Concepts and Ethical Issues in Genetic Counseling
* 23 - Nondirectiveness in Genetic Counseling: Conceptual and Normative
Dimensions
* Michael J. Deem
* 24 - Communicating Family Information in Genetic Counseling: An
Ethical Perspective
* Samantha J. Leonard and Ainsley J. Newson
* 25 - Genetic Counselors' Personal Reactions and the Ethical
Implications for Genetic Counseling Practice
* Patricia McCarthy Veach and Krista Redlinger-Grosse
* 26 - Ethical and Social Issues Connected to Genetic Testing of
Fetuses, Infants, and Children
* Dena S. Davis
* 27 - Genetic Counseling and the Problem of Exploitation
* Naomi Scheinerman
* 28 - Precision Medicine's Ethical Challenges: Roles for Genetic
Counselors
* Lisa S. Parker
* Part VI: Culture, Disability, and the Social Effects of Genetic
Counseling
* 29 - Cultural Responsiveness and Linguistic Competence in Genetic
Counseling:
* Taking Responsibility
* Nancy Steinberg Warren
* 30 - Genetic Counseling Outcomes, Patient Empowerment, and the
Genetic Counseling Outcome Scale
* Marion McAllister
* 31 - Reforming Informed Consent: On Disability and Genetic Counseling
* Elizabeth Dietz and Joel Michael Reynolds
* 32 - Genetics and Disadvantage: Inequity, Stigma, and Expectation
* Angus Clarke
* Part VII: The Future of Genetic Counseling
* 33 - Anticipating the Growth of Genetic Counseling
* Megan E. Trinkle-Tucker and Beverly M. Yashar
* 34 - Globalization of Genetic Counseling
* Mercy Ygoña Laurino and Austin E. Bland
* 35 - Growing Up with Genomes: Ethical and Practical Considerations of
Prenatal and Postnatal Genomic Sequencing
* Marsha Michie and Aaron J. Goldenberg
* 36 - Considering the Future of Genetic Counseling
* Deborah Cragun, Robert Resta, and Daniel Lee Riconda