This book explores what happens to people with profound intellectual and multiple disabilities (PIMD) when they reach adulthood. It provides an examination of various terms and definitions in use and a critical exploration of current UK policies.
This book explores what happens to people with profound intellectual and multiple disabilities (PIMD) when they reach adulthood. It provides an examination of various terms and definitions in use and a critical exploration of current UK policies.
Dreenagh Lyle is Visiting Lecturer at the University of Hertfordshire, UK.
Inhaltsangabe
Preface Chapter One: The 'ignored minority' Introduction Why terms and definitions are important UK and International terms PMLD > PIMD Research issues Definitions PIMD Definition Prevalence PIMD overlooked Bibliography Chapter Two: Policy Frameworks Introduction Representation or overlooked? Normalisation Social model and 'embodiment' or second wave social model Post-structural social model and 'brute facts' of genetics Personalisation Self-advocacy aka Speaking Up Acknowledging difference in service provision Beyond social model frameworks Bibliography Chapter Three: Disrupting the Illusion The New Vision: Rights, Independence, Choice and Inclusion Overview of storyline with reference to PIMD Construction of target population Spreading the Word, Advocacy, Personalisation and Employment Implications for services for services for people with PIMD Informal Family Carers Formal Care Workers Bibliography Chapter Four: All In The Same Direction Introduction Background Communication Communication Communication Culture of personalised support Consistency & Clarity =Trust Routine = Consistency of approach When 'no' means'no' Echoed words rather than language Guidelines, Charts, Feedback sheets Physical Intellectual and Sensory access Food and eating Water and Aloe Vera juice / digestion and elimination Physiotherapy and deep tissue massage Blood tests Music therapy Behavioural Support Needs: Where does the 'challenge' lie? Containment Building a team Training/Development Goals Task Breakdown Conclusion Resources Bibliography Chapter Five: Raising our Sights Introduction Settings and services Personalisation Why film is important Raising our Sights Families 'R'espite or 'r'espite Day / respite services Still fighting Community Specialist Health teams Training Bespoke training Conclusion Resources Bibliography Chapter Six: Raising The Bar: beyond the 'burden of non productiveness' Introduction Abuse Death by Indifference Improving Health and Lives CIPOLD > :LeDR Advocacy Advocacy Advocacy Core and Essential Service Standards: Raising The Bar Conclusion Resources Bibliography Index
Preface Chapter One: The 'ignored minority' Introduction Why terms and definitions are important UK and International terms PMLD > PIMD Research issues Definitions PIMD Definition Prevalence PIMD overlooked Bibliography Chapter Two: Policy Frameworks Introduction Representation or overlooked? Normalisation Social model and 'embodiment' or second wave social model Post-structural social model and 'brute facts' of genetics Personalisation Self-advocacy aka Speaking Up Acknowledging difference in service provision Beyond social model frameworks Bibliography Chapter Three: Disrupting the Illusion The New Vision: Rights, Independence, Choice and Inclusion Overview of storyline with reference to PIMD Construction of target population Spreading the Word, Advocacy, Personalisation and Employment Implications for services for services for people with PIMD Informal Family Carers Formal Care Workers Bibliography Chapter Four: All In The Same Direction Introduction Background Communication Communication Communication Culture of personalised support Consistency & Clarity =Trust Routine = Consistency of approach When 'no' means'no' Echoed words rather than language Guidelines, Charts, Feedback sheets Physical Intellectual and Sensory access Food and eating Water and Aloe Vera juice / digestion and elimination Physiotherapy and deep tissue massage Blood tests Music therapy Behavioural Support Needs: Where does the 'challenge' lie? Containment Building a team Training/Development Goals Task Breakdown Conclusion Resources Bibliography Chapter Five: Raising our Sights Introduction Settings and services Personalisation Why film is important Raising our Sights Families 'R'espite or 'r'espite Day / respite services Still fighting Community Specialist Health teams Training Bespoke training Conclusion Resources Bibliography Chapter Six: Raising The Bar: beyond the 'burden of non productiveness' Introduction Abuse Death by Indifference Improving Health and Lives CIPOLD > :LeDR Advocacy Advocacy Advocacy Core and Essential Service Standards: Raising The Bar Conclusion Resources Bibliography Index
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