When Adam began experiencing symptoms of an illness with which his baby sister was diagnosed, his parents had him tested. Sadly, they were told that Adam had Niemann-Pick type C, a rare, incurable disease. Two of their three children would not live into adulthood.
Although Adam lost his ability to speak at a young age, Missy's hope is to tell her son's story the way she imagines he would want it to be told. Adam's Voice is mostly written through Adam's eyes, allowing the reader to experience what he was going through as the years unfolded. His mom, Missy, fills in the gaps, explaining the medical diagnoses and terminology that a small child could not.
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