- A mother's memoir of coping with her son's rare disease, filled with insight, compassion, and humour
- In the U.S. alone, 15 million children suffer from rare, chronic, or incurable diseases
- Author started RareMoms.com, an online community for parents of rare disease patients, and actively promotes memoir writing via her #Memoiraholic email newsletter
- Author is a contributor to Huffington Post, TheMighty.com, Mamalode Magazine, and a monthly feature columnist at Kind Over Matter, and is frequently interviewed on podcast, radio, and TV about memoir writing
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