The New Genetics: From Research into Health Care (eBook, PDF)

Social and Ethical Implications for Users and Providers
Redaktion: Nippert, Irmgard; Wolff, Gerhard; Neitzel, Heidemarie

• Format: PDF

Produktbeschreibung

In this book the authors deal with the consequences of human genome research and especially problems in diagnosis and counseling, freedom of choices, patient autonomy, informed consent, confidentiality of genetic information, privacy, social discrimination and stigmatization.

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Produktdetails

• Verlag: Springer Berlin Heidelberg
• Seitenzahl: 169
• Erscheinungstermin: 6. Dezember 2012
• Englisch
• ISBN-13: 9783642584862
• Artikelnr.: 53396974

Inhaltsangabe

Introduction: The New Genetics: Social and EthicalFrom Research into Health Care - Implications for Users and Providers..- Opening Address.- Session I: The Provision of the New Genetics: In Whose Best Interest?.- Americans' Attitudes toward Informed Consent for Breast Cancer Susceptibility Testing: Questions for Cross-Cultural Research.- Nondirectiveness - Facts, Fiction, and Future Prospects.- Predictive Genetic Tests: Destiny or Danger?.- Session II: Providing the New Genetics in Primary Care: Problems and Perspectives.- Genetic Services in Europe - Primary Care Genetics Is a Priority for Health Care Systems.- Education in Genetics.- Genesis, Compulsions, Acceptability, and Future of Pre-Natal Sex-Selection in India.- Session III: Can the Implementation of New Genetic Tests Be Safeguarded by Consensus Policy Recommendations?.- Ethics and Genetics in International Perspective: Results of a Survey.- Consensus and Variation among Medical Geneticists and Patients on the Provision of the New Genetics in Germany - Data from the 1994-1996 Survey among Medical Geneticists and Patients.- The Case for Proposed International Guidelines on Ethical Issues in Medical Genetics.- Session IV: Critiques on the Provision of the New Genetics: Pros and Cons from Consumer and Provider Perspectives.- Statement on CF-Heterozygote Testing.- The Patients' Perspective on the Provision of Genetic Testing.- The European Alliance of Genetic Support Groups, Their Ethical Code and the Provision of Genetic Services.- What Could a Balance Look Like between Individual Autonomy and Society's Need to Regulate?.- New Genetics, New Ethics?.- Guidelines on Ethical Issues in Medical Genetics and the Provision of Genetic Services.