Sarah Foster

This Is Me Smiling (eBook, ePUB)

• Format: ePub

Produktbeschreibung

"Virgin River" or "Complete Unknown" viewers may wonder about Huntington's disease, a rare, incurable genetic disorder that afflicts the show's expectant father and the film's Woody Guthrie. Sustained societal gaze has been waiting for memoirs like mine to learn how this disease progressively damages (among other things) the ability to speak, think, move, swallow and regulate emotions. Death occurs from heart failure, aspiration pneumonia or suicide. This book describes which HD symptoms are playing out in my life, what my mother's side of the family experienced. and how Randy, my husband is becoming my caregiver. I am losing the ability to communicate how, which is my greatest fear. I am the third-generation embodiment of the neurodegenerative plight. Like Charlie in "Flowers for Algernon," I know what is coming and it's a race against time to describe how Huntington's disease affects me. Knowing you, reader, understand this disease will help me make peace with a life I never planned for or wanted.

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Produktdetails

• Verlag: Lulu.com
• Erscheinungstermin: 14. Mai 2025
• Englisch
• ISBN-13: 9781300564614
• Artikelnr.: 75510799

Autorenporträt

The defining memoir about Huntington's disease, "This Is Me Smiling" has been an exercise for the author to reconstruct her relationship with her honest emotions, especially happiness, especially joy and especially a transcendent state of peace. "After years of trying to make my dying brain solve its own mysteries, I had the epiphany that that's exactly what it's not designed to do. I've reassigned it to seek out happiness or contentment in its simplest form," said Sarah Foster